It won’t make you dead

Gail Rubin is a writer and blogger in Albuquerque, New Mexico. I’ve just looked up Albuquerque on google maps. It’s a long way from a decent beach.

Gail has written a book, A Good Goodbye: Funeral Planning for Those Who Don’t Plan to Die, which will be published at the end of this month. She also does some outreach work for an excellent funeral planning website, Funeralwise.com. It’s full of good advice; it’s well written and intelligent.

I’ve ordered her book already, and I urge you to do the same. Here’s what Gail says about it:

“Just as talking about sex won’t make you pregnant, talking about funerals won’t make you dead – and your family will benefit from the conversation. A Good Goodbye provides the information, inspiration and tools to plan and implement creative, meaningful and memorable end-of-life rituals for people, and their pets, too.”

Joe Sehee, executive director of the Green Burial Council, says: “Gail Rubin takes on society’s last taboo in a readable, practical manner with a light touch. It’s a great read for anyone who isn’t sure about this ‘death thing’ and how to best prepare for it.”

I’m looking forward to getting my copy. You can order yours here.

When Gail was in college thirty years ago, in an enterprise which prefigured her later immersion in the logistics of mortality, she made the short spoof  (above) of gloomy old Ingmar Bergman’s Seventh Seal. It made me chuckle and I hope it has the same effect on you.

Cruel and all too usual

There’s a good, long piece in the Huffington Post by Lloyd I Sederer, a doctor, describing his mother’s decline and death. He describes a problem which is going to become more and more common.

Longevity is not all it’s cracked up to be. If we are lucky enough live into ripe old age, our dying may well be a protracted and unbearable ordeal prolonged beyond humanity and reason by attentive medics. That’s why more and more people are going to Switzerland to swallow hemlock.

It’s something society needs to address with some urgency. The problem is already big and it’s going to get huge.

Here are some extracts from the Huffington piece. I’m sure they’ll impel you to read the whole thing.

My mother died on a Monday a few weeks ago. We buried her, in the Jewish tradition, the next day. But we lost her more than a year before when a cardiac event she survived robbed her brain of the oxygen that sustains it and ushered in a dementia that took her away well in advance of her death.

The mental torment of dementia is what gives it its unique cruelty. As horrific as the psychic pain of dementia is, I wonder if it gets the recognition it warrants. Medical care has come to appreciate the crucial importance of mitigating physical pain but mental pain, no less agonizing, has yet to receive its proper due. Psychic pain is equally distressing as physical pain, and to make things worse, for dementia it has few good remedies.

I know death was a relief for my mother — a desired end … She also had made her wishes perfectly clear years before in her health care proxy and power of attorney. She understood, though never used the term, what dying with dignity meant.

…decisions abound during the process of first declining then dying. Not to mention the often tortuous decisions about money, there are decisions about treatments: how should someone be treated for their illness as well as the cascade of complications that frequently befall someone as their immunity diminishes and their infirmity increases. There are decisions about care taking … the most well known decision is whether to DNR (Do Not Resuscitate), but the questions are far more nuanced, as a rule. Here is where a living will or health care proxy is a blessing.

My mother’s time was ushered in after she fractured her hip trying to climb out of bed during a night of terror we could only infer was from her distress. But here is a story about American medicine that needs to be told.

The fracture was discovered some days after it occurred when she was rushed to the hospital with trouble breathing. I received a call from the physician’s assistant to the chief of orthopedic surgery. My mom had a hip fracture but the bone had not been displaced from its socket … She was in no pain. The PA said they wanted to operate, to place a set of screws in her hip … I called back to say no and soon received a call from the surgeon himself to urge me to proceed with the surgery.

That moment was a wake up call for our family. We asked ourselves what would give mom the best moments of life and experience in the time she had left? We realized that goal would be best achieved if we placed her in hospice care. This may sound oxymoronic, but when the time comes give it a try. Fundamental to hospice, contrary to common understanding, is how to make the most out of what time remains, not how to deny care or bring life to a rapid conclusion.

Fighting death and disability at the end too often steals what few moments of actual life remain for someone facing imminent passing. For my family, it was human kindness and eschewing aggressive and dubious treatments that enabled our mother to savor at least a few good moments while still on this earth. But thankful as I am for that I still wonder, until we have more miracles in medical care, is there a better way than the path we are so stubbornly now on?

Find the entire article here.

A very, very good book

Tom Jokinen is a radio journalist and producer in Canada. In 2006 he took time off from his job to train as what we in the UK might call a funeral service operative. Why did he do it? Part curiosity: “There’s a time, from when someone dies to when they magically pop up at the funeral or the cemetery or as a bag of ashes that remains a black hole, invisible to the rest of the world, and everyone’s happy with the arrangement.” He wants to find out about that. The other component of his motivation (if it can really be analysed) is temperamental: Tom is of Finnish descent and “Folklore says the only time a Finn ever feels joy is when he’s imagining his own funeral.”

He’s written a book about it: Curtains – Adventures of an undertaker-in-training. It is intelligent and humane. It is full of interesting behind-the-scenes information – the what really goes on – together with thoughts and reflections on life and death (you can’t have one without the other).

He critiques Mitford: “To me, the heart of the debate she left behind is a nagging question: what is the body anyway? Is it charged, mystical, something to be marked and honoured with ceremony and balm, or is it “discarded clothing”?”

He talks about Richard, one of the funeral directors at the funeral home: “he views the undertaker’s role as grief therapist this way: grief therapy is bullshit. The only therapy he provides is to make sure the limo turns up when it’s supposed to, the right hole is opened at the cemetery and the right music is played at the service … There’s no false sympathy and hand-holding, which is how the corporate undertakers mostly play it. They want to be your friend. He wants to be your funeral director.”

He considers the “illusion of vitality” achieved by embalming: “It’s a paradox that Japanese robot builders have been trying to solve. They keep building human replicas that look more and more lifelike … they find that the closer they get to perfection the more frightening the end product appears … The embalmed corpse is an in-between: both a person and an object to fear.”

Tom talks about his own fear of handling dead bodies. His boss “told me to be patient, that my natural fear would evolve into something deeper: respect and awe for the body. We live in a caste system, where the Brahmins subcontract their problems to the unclean, the Dalit caste, the corpse-handlers. In time I’d get used to my social role.” Later, “During a cremation, Glenn shows me how to open up the skull with a iron hook to expose the soft tissue to the open flame, thereby getting a cleaner burn.” Another funeral director tells him “You should respect death and respect the dead, not out of fear, but because it’s the proper human thing to do. He says hospitals have made us ashamed of death. When we die we should all be allowed to leave through the front door, same way we went in.”

He quotes all manner of interesting people: “According to the anthropologist Nigel Barley, the Toraja of Sulawesi wrap their dead tightly in absorbent cloth to preserve them until the next stage of the ritual, which may not come for years. He met a man who kept his dead grandmother in his house as a storage shelf for his collection of alphabetically organized cassette tapes.”

He’s an acute observer. In one funeral home he notices that the pictures on the wall, “like every painting I’ve ever seen in a funeral home, have no people in them.”

He attends a Mennonite funeral: “It’s the same ritual that sent their grandparents and great-grandparents to the sweet home of the happy and free, and when they die, and their kids die, someone will dig a hole and bury them too. There’s a symmetry that’s also oddly liberating in its lack of choice.”

He talks about home funerals. “BT Hathaway, the Massachusetts undertaker … told me it was fine, the home funeral, for the 5 per cent who have money, time, resources, education and political and emotional will. ‘But the average consumer is not so well equipped,’ he said. ‘It’s poetic, but the truth is, I don’t know that many poetic families.’ This of course is the same argument for why people eat at Pizza Hut instead of milling their own wheat and breeding their own pepperoni cattle: why make it hard on yourself?”

He asks his boss: What’s the right thing to do when someone dies? “He thought about it, then said, ‘I don’t know.’ Not the answer I wanted, but after a moment he added, ‘I think you have to struggle with it.’”

Tom’s own conclusion is similar: “A simple act, without the artifice of embalming or baroque funerary product. Just a direct application of body to ground where it’s left to contribute to the great cycle: ashes to ashes and all that, back to Mother Nature in a shroud and a plain wooden box. Instead of deflecting a confrontation of death through commerce, you face it, fill the hole by hand, and then get on with the hard work of mourning, knowing that instead of passively choosing an object from a catalogue and subcontracting the ritual to someone else, you’ve acted, taken a stand, not against dirt but in favour of it. An act with meaning.” In the evening he meets his wife for supper. “I have seen the future,” I tell her. “And it’s Jewish.”

This is a very, very good book. Amazon will gladly send you a copy in exchange for just £9.99. Money well spent. Subsequently, time well spent.

Paul’s Epistle to the Bypassers

Paul Sinclair is best known in the world of funerals as the man who heads up Motorcycle Funerals and offers what, with characteristic self-deprecation, he describes as “the most professional, thrilling and coveted motorcycle hearse in the world.” A coldly objective appraisal shows this claim shows to be an understatement. Paul is the best by three laps of the Isle of Man TT course.

He’s not only the world’s best motorcycle-and-sidehearse provider, he’s also one of the warmest, nicest people you’ll ever meet. And he doesn’t just rev up his bikes, he revs up the faithful, too, for he is a fully qualified Rev in the Elim Pentecostal Church, a denomination which likes its preaching hot. The Faster Pastor, they call Paul. A non-conformist in all senses who has dedicated his life to “an adventurous walk with God.” Before he started conveying the dead on their final journeys, he spent nine years as a minister in wildest Willesden, the most violent place in the UK. Now he’s written a book about it, Now Open Sundays!

It’s a great picaresque account of insuperable hardships faced and, by reckless faith, overcome. In one of his first sermons he illustrates his point with a Sex Pistols track. Surveying his congregation afterwards he concludes “It was time to pack my bags before I was thrown out.” But they like him. He lives to tell of adventures which bring him into contact with the Queen, Ken Livingstone and Clint Eastwood.

Paul’s story is woven round the signs he displayed outside his church. We’ve all seen these wayside pulpits and, most often, groaned. But Paul’s messages had a topicality and humour which make them all-time classics of the genre.

Paul is one of the funniest people in the known universe. He has a particular gift for celebrating the absurd. Here’s an example. I was keen to promote a healing service at the first opportunity I could once I had become a minister, but on the day of the first service the healing evangelist called in sick! I tried again with another one and he couldn’t make it because his wife was ill!

In twelve years I can only remember one critic of our Wayside Pulpit in the whole of Brent – an atheist! When we posted our ‘International Atheist Day – April 1st’ sign he was so unhappy he even reported me to Willesden Green Police station. God bless him, I was so delighted with his reaction I kept it up another month!

This book is a great read. Buy it.