self-deliverance

Good short life, short good death

10 July 2011
Charles
4 Comments
Categories: Attitudes to death, medical interventions in dying, self-deliverance

Posted by Charles Cowling

I HAVE wonderful friends … one, from Texas, put a hand on my thinning shoulder, and appeared to study the ground where we were standing. He had flown in to see me.

“We need to go buy you a pistol, don’t we?” he asked quietly. He meant to shoot myself with. 

In addition to wonderful friends, New York Times journalist Dudley Clendinen has ALS, commonly called Motor Neurone Disease in the UK. In a very powerful piece he describes what he’s going to do about it.

There is no meaningful treatment. No cure. There is one medication, Rilutek, which might make a few months’ difference. It retails for about $14,000 a year. That doesn’t seem worthwhile to me. If I let this run the whole course, with all the human, medical, technological and loving support I will start to need just months from now, it will leave me, in 5 or 8 or 12 or more years, a conscious but motionless, mute, withered, incontinent mummy of my former self. Maintained by feeding and waste tubes, breathing and suctioning machines. 

No, thank you. I hate being a drag.  

I think it’s important to say that. We obsess in this country about how to eat and dress and drink, about finding a job and a mate. About having sex and children. About how to live. But we don’t talk about how to die. We act as if facing death weren’t one of life’s greatest, most absorbing thrills and challenges. Believe me, it is. This is not dull. But we have to be able to see doctors and machines, medical and insurance systems, family and friends and religions as informative — not governing — in order to be free. 

He’s not going to do anything to prolong his life:  “Lingering would be a colossal waste of love and money.”

Read the whole beautifully thought, beautifully written piece here.

Roundup

1 March 2011
Charles
No comments
Categories: End-of-life issues, euthanasia, medical interventions in dying, self-deliverance, Tweets

Here’s a roundup of news stories I’ve tweeted in the last fortnight. It looks rather a lot — but I try never to fob you off with quantity at the expense of quality. I hate having my own time wasted, so I try hard not to waste yours. Take your pick and enjoy — or gobble the lot and gorge yourself.

Before you do, though… If you missed last night’s Dispatches on end-of-life care, do catch it on 4OD. I don’t know what you’ll think of it — or did, if you’ve seen it. For me, it was the contrast with the care given to those at the start of life that most struck me. We don’t have elders in our society, it seems, only disgusting old people.

Upgrade work at Shrewsbury crem ditched. Aren’t crems easy targets of cuts?! http://bbc.in/dK68PX

Satan’s undertaker’s online memo site is http://bit.ly/eRn1HT Is it any relation of this: http://bit.ly/ebnw8e? Wha gwan?

Priest makes off with bones of child saint – http://bit.ly/gCyKd4

“The Freudian implications of filming a sex scene in the shadow of a soaring obelisk” – http://bit.ly/g4fTKF

Some interesting #funeral industry analysis here- much that is typical – http://bit.ly/elobdS

“Now that I’m dead, I want to tell you a few things.” Last letters. I love this site – http://bit.ly/cRpFuX

DeathRef Death Reference Desk

by GoodFunerals

Happy Valentine’s Day darlings. http://fb.me/T6DJ7iOE

What’s the fuel cost of a cremation in the UK? Guess! Okay, I’ll tell you… £16.25

Lovely topical mezzotint on the Morbid Anatomy blog today – of two dissected hearts. Typical! http://bit.ly/eI5iHw

Nice wheeze for a floral eulogy here – http://bit.ly/hqaHTd

Bio-cremation “could warp metal pipes and burn crematorium workers” – http://lat.ms/i2d1m3

Bad guys always go to the funeral. That’s the place to arrest them –http://bit.ly/ekDmpj

The Top 20 Most Inappropriate Songs To Play At A Funeralhttp://youtu.be/MkYXS4CDU6Y

Really nice sendoff here culminating in a Viking funeral for the ashes – http://bit.ly/gugn2j

My Big Fat Gypsy Funeral? I’d like to see this – http://bit.ly/eYplL0

Malidoma Some and the power of ritual. A great man. Catch him here: http://bit.ly/eY9h8T

“Trad Brit stiff-upper lip has melted into a wobbling lower one.” Is modern grief incontinent? http://bit.ly/hXrfKA

Click on ‘Progressive Conservatism Project’ at the Demos website and you’ll get this: ‘That page could not be found’ !!!

“The great thing about being old is that you don’t give a bugger about people’s opinions anymore.” Dolly Frankel.

Very good booklet here from cancer.net spelling out for terminal patients their end-of-life options – http://bit.ly/fflu8r

“E’body wants a good death but not a moment too soon, but they don’t have the language to ask for it.” http://bit.ly/g3JWCW

“I knew something was terribly wrong with my marriage when I planned my husband’s funeral.” Great first line! http://bit.ly/eDVnEY

“Webcast funerals are dehumanizing – the necessity of human contact requires the physical presence of mourners.”http://bit.ly/eUYVQT

A classic illustration of the systemic incapability of corporate FDs to provide a good service – http://wapo.st/gh1pMf

Would the sale of Bretby crematorium amount to ‘privatising death’? Well, it’s a good question – http://bit.ly/ekH9jp

’26 babies buried together in a wooden box along with unidentified limbs and bones.’ They do this in the US. Shame!!http://huff.to/gaBdyu

Teacher makes her final journey in her VW camper van. Touching story, this – http://bit.ly/faIUHh

‘So recently directing medical care, now we are awkward bystanders.’ Hugely humane doctor’s response to death –http://nyti.ms/hbx8iC

RIP trolling. New to me (but maybe not to you) – http://bit.ly/hf2ikY

What’s responsible reportage and what’s voyeuristic grief porn?http://bit.ly/hIehDs

Mourning glory – the Banshee. Real or myth? Good stuff here –http://bit.ly/gY7nH4

The family is dead? 368 direct descendants at funeral of L’pool matriarch – 17 lims followed the hearse – http://bit.ly/hq6rMz

A funeral at a rugby ground. Great venue, great sendoff –http://bit.ly/gBs9F1

2 biggest comps you can pay an FD: You look nothing like an undertaker; this place is nothing like a funeral home –http://bit.ly/eKUEVm

Some very touching condolence messages on this online memorial site – http://bit.ly/e68jq3

Interesting reflections by ASD folk on weddings and funerals –http://bit.ly/eJyc8d

Great story here + pics: the funeral of racehorse Man o’ War, embalmed (23 gals) and casketed – http://bit.ly/idcYp0

StNeotsFunerals Andrew Hickson

by GoodFunerals

Our new Funeral Price Estimator is up and running online. Open and honest and proud of it.http://www.kingfisherfunerals.co.uk/costs.html

US undertaker offers end-of-life workshops. I like this.http://bit.ly/erO8zM

Love this irresistible free offer from the Neptune Society –http://bit.ly/i86PaI

‘After my sister died I went through her computer and deleted everything questionable so my parents wouldn’t find it.’http://bit.ly/fgqYzN

Online memorial site of the day: last-memories.com. Great twinkly backgrounds. And it’s free! http://bit.ly/fC1V7y

Oh dear, SCI in the doo-doo again. Are these big corps systemically inept? http://bit.ly/fPq7mh

Good piece in the HuffPo here on end-of-life planning –http://huff.to/gqZDUF

DIY suicide causes horrible death, claims EXIT. Time to legalise? http://bit.ly/ffDoI1

Oz police shut the pubs when there’s an Aborigine funeral in town. Racist? http://bit.ly/eIrtbE

Pulling the plug

11 January 2011
Charles
3 Comments
Categories: Attitudes to death, Longevity, self-deliverance, suicide

I know I go on about this, but I think it important. Long, long life is getting to be a problem. Thirty years ago dying was a relatively brief, often unexpected episode. Clever medics can now prolong it – intolerably and expensively.

That last goodbye for most of us just keeps getting put off and the state has to find more and more money for more and more tottering and tumbledown folk. Not for me, I drink and smoke at lot, I’ll go down like a felled ox thank god when that big vein in my forehead goes bang. But you self-denying abstinence- and exercise freaks – how many years of decrepitude, double incontinence and dementia is it all buying you?

Here’s some food for thought, perhaps:

In the Jan Oldie magazine there’s an interview with a man called John Barnes. He’s eighty-something and fit as a flea. The interviewer asks him this question: ‘Have you found a way of coming to terms with death?’ And he replies: “You have to learn to accept that you don’t come to terms with it. Sometimes I think that people who’ve got blind religious faith and believe they’re not going to die are the luckiest. My feelings swing to extremes. Life seems marvellous when my old ramblers [he takes oldies walking] are enjoying sunshine in the country, when I’m holding an attractive girl in a dance, or when I’m entertaining a crowd of people with my songs. The rest of the time I wonder whether the NHS ought to be spending so much effort on keeping me alive.”

Over at the Morialekafa blog we read this:

Somehow I found myself last night in a discussion of what should happen to old people if there is not enough money available to keep them all alive. That is, would there ever be enough money available for health care for all, and if not, what about “death panels.”

You are all doubtless http://quotecorner.com/online-pharmacy.html aware of the claim that Eskimos would sometimes leave their old people to freeze to death when there was not enough food to feed everyone. There is little doubt that old people accepted this as a necessity and perhaps even volunteered themselves …

First of all, I doubt that anyone really knows very much about what happens to old people in the United States at this time. For example, it is clear that the suicide rate for those over 65 goes up rather sharply … I think it is entirely possible that many of these suicides are deliberate senilicides, carried out to relieve the potential burden on their survivors, but does anyone really know this? …

How much is a week of life, when one is ninety, really worth?

…

Where I worked for a time in the New Guinea Highlands, when a person is considered so old they are obviously near death, their survivors and others hold a funeral ceremony for them while they are still alive, to let them know they are respected and will be missed (also to placate their potential ghost so it will not hang around causing misfortune). These occasions, perhaps needless to say, are very emotional, the speeches can be endless, and the oldsters are sometimes overcome, weeping and even falling to the ground. This seems to me to be a more sensible and genuine way of saying goodbye and expressing grief than by feeling guilty and regretting you did not do and spend more to prevent the inevitable. [Source]

Now hop over to the excellent Death Reference Desk for a series of articles about Republicans and Tea Party nutters in the US who either out of stupidity or malignity have been confusing end of life planning (a now ex-component of the Obama Patient Protection and Affordable Care Act) with death panels. [Source]

It’s a whole new ethical area, isn’t it? As abortion once was…

Helpers fail, comforts flee

20 September 2010
Charles
1 Comment
Categories: Assisted suicide, Attitudes to death, Death; Good death, euthanasia, Exit, Humanists, medical interventions in dying, self-deliverance

I enjoyed this piece by David Nobbs, creator of Reginald Perrin, in yesterday’s Observer. Here are some extracts.

My mother died on 7 August 1995. I didn’t realise, that day, my life had changed … My mother died, as she had lived, unselfishly. After she’d died, my wife Susan and I were just in time for Sunday lunch at my aunt’s. That may sound frivolous, but it was so typical of her I actually believe that some unconscious influence was at work.

She had lived about as happily as it was possible to live in the 20th century, for almost 95 years. She had been ill and in hospital only for the last two weeks. At times, during those two weeks, she had been restless and disturbed, but that Sunday morning she became more and more peaceful. Her breathing began to get slower. She had worried for Wales, and I had no doubt this contributed heavily to her worry lines, but now all those lines disappeared – her face became smooth and she looked young again. Her breathing faded and slowed so imperceptibly it was hard to recognise the moment she actually died.

I can honestly say, on reflection, that witnessing her death took away from me all fear of my death. (Not of my wife’s death. I fear loss dreadfully.)

That doesn’t mean I welcome the ravages of old age. I fight against them. In my 70s I have taken on a fitness trainer and last month I began to tweet! I hope that I will not die in great pain or in an old people’s home. But I no longer fear the moment when I will cease to exist

But the most important thing that happened to me in the wake of my mother’s death wasn’t the strengthening of my feelings against religion. It was the strengthening of my feelings for disbelief. I believe that there are just as many of the “Christian virtues” to be found among the faithless as the faithful…

Loss of faith. It sounds so negative. I didn’t lose faith. I gained faith. Faith in people. I am proud to describe myself as a humanist.

This growing conviction has had quite an effect on my writing – on the novels, at least. I am sometimes described as a comic novelist, but I describe myself simply as a novelist. I write about life, and in life I see much humour and much tragedy, and that is what I write about.

An irony of all this is that if my mother could hear me, could read this, she would be very distressed and would be horrified to think that her death had led me down this road. Well, there it is, it’s what has happened and luckily I believe (know?) that she can’t.

Read the entire article here.

David Nobbs talks about how he is dealing with ‘the ravages of old age.’ I guess that, as we embark on an era when, for most of us, we’ve never had it so old, there will be more and more writers dealing with if and how ageing can be made endurable as physical debility advances and we are deserted by all interest in sex and shopping. A book which has been well reviewed is Jane Miller’s Crazy Age: Thoughts on Being Old. There’s article by her in the Guardian here. The social problems thrown up by an ageing population will become more and more apparent in the next 20 years and I suppose the answers to them are, for the time being, unthinkable. But not for very much longer.

Over on BBC Radio 4 tonight at 8pm there’s a challenging-sounding if uncheerful-sounding  programme, Exit Strategy, by Jenny Cuffe about assisted dying and self-deliverance. “The debate over whether we should legalise assisted suicide is not going away. But whilst we flounder over the grey areas of the British legal system, a radical Australian doctor has found a loophole. Because physically helping someone to die is illegal, he is providing information to paying participants on how to die peacefully and painlessly kill themselves … Talking with geriatricians, psychologists, campaigners and elderly people she explores society’s last great taboo: death. She asks why so many people approaching old age are scared of dying. Are they being failed by our care system? Are advances in medicine extending quantity but not quality of life? Or is even discussing assisted suicide for the elderly symptomatic of an ageist society that undervalues the old? Should the ‘I want’ generation be able to make the choice of when we die and have the right to plan our own Exit Strategy?” If you miss it, you can always catch it on the Listen Again.

Practicalities and suicide pacts

21 August 2010
Charles
4 Comments
Categories: Assisted suicide, Dignity, Exit, Good death, Humanists, self-deliverance

Here’s a highly recommended post over at the Exit blog: Heartache of a death not shared — a helium suicide fails.

It discusses this story as reported by the Times:

Early one morning in September, William Stanton heard footsteps coming up the stairs of his cottage in Somerset. He knew who it was and panicked. “I shouted out: ‘Go away, Nigel, leave me to it, leave me to it!’”

Nigel, a neighbour and family friend, did not go away. He came into the bedroom and found Stanton in distress and his wife Angela lying dead with a plastic bag over her head.

The Stantons had made a pact to end their lives together and put it into effect just days after the director of public prosecutions revealed how he would apply the law prohibiting assisted suicide. It did not work out as they planned and stands as a terrible cautionary example for anybody thinking that self-inflicted death is easily arranged…

Still, small voice of calm

25 January 2010
Charles
No comments
Categories: Assisted suicide, self-deliverance

The novelist Martin Amis has called for euthanasia booths on street corners, where elderly people can end their lives with “a martini and a medal”.

The author of Time’s Arrow and London Fields even predicts a Britain torn by internal strife in the 2020s if the demographic timebomb of the ageing population is not tackled head-on.

“How is society going to support this silver tsunami?” he asks in an interview in The Sunday Times Magazine today.

“There’ll be a population of demented very old people, like an invasion of terrible immigrants, stinking out the restaurants and cafes and shops. I can imagine a sort of civil war between the old and the young in 10 or 15 years’ time.”

Read the Sunday Times account here. And the Independent account here.

Should she or shouldn’t she?

18 January 2010
Charles
No comments
Categories: Assisted suicide, self-deliverance

When Charlotte Raven was diagnosed with Huntington’s, an incurable degenerative disease, there seemed only one option: suicide. But would deciding how and when to die really give her back the control she desperately craved? And what about the consequences for her husband and young daughter?

In 2006, 18 months after the birth of my baby, I tested positive for Huntington’s disease. The nurse who delivered the news hugged me consolingly and left me with my husband and a mug of sweet tea to cry. In the days that followed, I began to realise why so few of the people at risk of inheriting this incurable neurodegenerative disorder chose to find out.

Having tested positive for HD, I was told it was inevitable that I would develop the disease at some point – but that it was not possible to know when. HD typically strikes in midlife. A fortunate few like my father suffer no symptoms until as late as their 60s, but for most it begins in their late 30s to mid-40s. I am 40 years old.

My first suicidal thought was a kind of epiphany – like Batman figuring out his escape from the Joker’s death trap. It seemed very “me” to choose death over self-delusion. Ah ha, I thought. For the first time since the diagnosis, I slept through the night.

Very interesting article on self-deliverance/suicide in the Guardian. Long, but well worth it. Read it all here.